Saturday, October 8, 2011

Spina Bifida Clinic (3of31)

We are very grateful to have the Spina Bifida Clinic at Primary’s. This is a huge blessing. At Spina Bifida Clinic all the different specialists come and we get most doctor visits done with one visit. Emylie's visit yesterday was busy, busy, she had visits with: the orthopedic, dietician, physical therapist, geneticist, pediatrician, nurse, nurse pracititioner, neurologist, and urologist. She was weighed and measured and thankfully this appointment had little poking. Emylie was more calm at this appointment than she is at the trach/vent clinic. I think it is because she knows one of the doctors there sticks a tube in her nose.
Her calories were increased as well as her fluid intake, a “potty training” program was briefly discussed, her scoliosis was looked at and several other things as well. The physical therapist discussed some ways to increase the strength in her arms to make her more likely to walk and almost 5 hours later we were on our way home.

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